A review of www.clinicaltrials.gov was done on October 20, 2011 to identify which therapeutic trials are currently listed as open for the newly diagnosed child with DIPG. The following is information on the ten (10) listed trials that were listed as accruing patients as well as one vaccine trial that is yet to open. Contact information is listed at the bottom of each clinical trial site. Most US clinical trials for DIPG can be found with the key word "pontine glioma" but some are still listed under "brainstem glioma". More Info: http://www.cristianriverafoundation.org/clinical.html
The "The Pediatric Brain Tumor Foundation" website is very helpful for DIPG parents. It provides parents with a basic understanding of the steps involved in participating in a clinical trial.
Link: http://www.pbtfus.org/families/support/ipsic/clinical-trials.html
