风暴中的仰望

风暴中的仰望 Look Up in the Storm

愿你和家人在神的手中,如一叶轻舟。 愿孩子在神的手中,如一朵花。
我们的一切际遇还有什么不是在祂手中。
神留下暴风骤雨的日子,因祂自己做了我们的遮护。
“不要怕,只要信。”是祂亲口所说。
主啊,我们流泪,湿的是祢慈爱脸庞;我们遭遇险滩,是为了证明祢仍领航!
恶者的箭,无法穿透信心的藤牌,祢在逆流中登上我们的小船,
要使风和浪都平静,使我们的生命更加丰满。
作者:教会的一位姐妹,也是孩子父母的好友

Tuesday, January 24, 2012

DIPG Family Binder 2011 and the Moss Report

“DIPG Family Binder 2011” was developed by parents whose child suffered DIPG. It has basic info on DIPG, their stories and reference to “The Moss Report”. It has high-level info on treatments, diets, supporting groups, resource links, etc. In the last section, it has blank charts for recording health, appointments, questions to ask doctor, etc.

The Moss Report is a 472-page handbook with very detailed info on DIPG, analysis on carious treatment options (pp 16-40), Clinical Trials (pp 87-133), Innovative Cancer Clinics around the world -- not including China (pp167-235), food and diet (pp 235-290). It has many useful practical info, such as choosing a clinical trial (p101) and choosing types of organic food (pp 241-247), other food related topic (pp 235+), etc. Other section, such as alternative approaches is more of author's own researches/studies/opinions and sometimes controversy. There're also many different opinions and objections out there.

These two documents in pdf format can be downloaded from http://dipgcommunity.org/?page_id=13. Somehow they both have the same online file name, so make sure to save them w/ different filename when downloading.