风暴中的仰望

风暴中的仰望 Look Up in the Storm

愿你和家人在神的手中，如一叶轻舟。 愿孩子在神的手中，如一朵花。
我们的一切际遇还有什么不是在祂手中。
神留下暴风骤雨的日子，因祂自己做了我们的遮护。
“不要怕，只要信。”是祂亲口所说。
主啊，我们流泪，湿的是祢慈爱脸庞；我们遭遇险滩，是为了证明祢仍领航！
恶者的箭，无法穿透信心的藤牌，祢在逆流中登上我们的小船，
要使风和浪都平静，使我们的生命更加丰满。
作者：教会的一位姐妹，也是孩子父母的好友

Saturday, January 28, 2012

"Family Support" section on PBTF Website

We found the “Family Support" section on Pediatric Brain Tumor Foundation website is very helpful to  DIPG parents. It provides parents with lots of useful and practical infomation, including the basic understanding on the diagnose, treatments, selecting clinical trials, school re-entry after treatment, help other children in the family and many more. Many of them are online audio.  
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